Tag Archives: finding balance

Share Your World: Week 4

28 Jan 16
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I can’t believe it’s almost the end of January already and we’re up to week 4 of Share Your World 2016 !

So far this year I’ve been struggling to maintain my balance. If I look at it from a week or month point of view I’m doing ok but on a daily basis I’m still struggling. Some days are crashed on the couch and unable to do anything much other than listen to an audio book or the tv in the background. Other days I’m rushed off my feet trying to do appointments and out of the house activities… I haven’t worked out the balance there yet.

It’s difficult for me to work out how to do this properly because I see the benefit of not having to drive more than once or twice a week (it’s still an activity that wears me out a lot) but then it means those days I am out I don’t manage to pace my step count, I don’t get my usual rest breaks, and I just over do it in general.

I’m also struggling to get any sort of regular routine in place for work activities. I’d love to be doing at least a minimum amount of work each week but Foggy Frog seems to be my constant companion again and he’s making it very hard for me to do anything for more than 5-10 minutes at a time with any hope of having reasonable results.

How do you pace yourself with activities outside the house or with adding in any work?

Anyway, being Thursday today, it’s time for another round of Share Your World.

Share Your World – Week 4

What one thing are you really glad you did yesterday?

Yesterday was one of those super full days where I over did it. That doesn’t mean there weren’t things I achieved that I’m really glad to have done though…

I managed to make it in to town to have lunch with E and one of his work colleagues before heading to the meeting I had in the afternoon. This is something that I really enjoy doing as it doesn’t happen very often these days unless I have a medical appointment in town.

Are you generally focused on today or tomorrow?

I do have a habit of focusing on things that I feel are important or scary that might be happening in the future but these days, thanks to the uncertainties related to my health, I’ve gotten a lot better at just focusing on one day at a time. Most weeks I don’t even look at my calendar in advance unless I’m booking something in. I might check it the night before when I’m getting ready for bed or when someone asks me what I’m doing.

Would you want a guardian angel/mentor? What would they tell you right now?

A mentor (or several mentors) provides inspiration, advice and guidance to help you succeed the best in life. Yes, I’d want that in my life and look up to several people in my life now as mentors.

Right now my mentor would be telling me to remember to be gentle with myself. As you might be able to tell from the last few posts I’m feeling very frustrated about my limitations at the moment. I’m wanting to do way more than my body will actually allow and I’m struggling to accept it. If my mentor was here right this minute they’d be reminding me that my health is the most important thing, without it I can’t do anything. They’d be telling me to continue to listen to my body and rest when I need to, to accept where I am at the moment, and to not set unrealistic expectations for myself.

Would you rather live in a cave house or a dome house made out of glass? (photos of the houses found on google search)

I love the idea of both but my dream house would be a dome house that’s built into the ground with lots of glass… something like this.

Bonus question:  What are you grateful for from last week, and what are you looking forward to in the week coming up?

I’m grateful for the understanding and support of the wonderful people in my life. I realised in the last few weeks that I’m not going to meet my deadline for one of my consulting jobs. When I contacted the client to let them know they’ve been very understanding and said there is no rush and to just work on it as quickly as I can.

Being able to spend time with my friends has also been very satisfying.

In the next week I’m looking forward to talking with my doctors about some test results I got in the last week and hopefully getting some guidance on how to approach the issues that have arisen (More to come in an upcoming post on this).

Share your World: Week 2

13 Jan 16
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Balance… My word for 2016… is difficult to achieve. I’ve got many ideas for posts but, in an attempt to maintain my balance, you’ll find for the next few weeks at least you will only be getting 2 posts a week from me… My No Buy Challenge update and this, my Share Your World post (although I will probably add a bit of commentary to each like this).

Although I have been keeping it in mind each day I still managed to do too much last week and crashing again on the weekend.

This week I’ve begun trialling yet another drug (Cymbalta this time) to see if it helps me with pain and fatigue. Thankfully my doctor recognises that I’m sensitive to drugs so we’re starting at a very low 10 mg a day.

Share Your World: Week 2

Do you believe in extraterrestrials or life on other planets? 

I don’t believe in extraterrestrials in the sense of the aliens you see in many movies but I do believe that the chances of life (in some form) on another planet are quite high. Given how large the universe is I don’t see how this can be the only planet on which life has grown.

How many places have you lived? You can share the number of physical residences and/or the number of cities.

I’ve only ever lived in South Australia, but given that my parent’s divorced when I was young and we moved around a bit I’d say I’ve lived in at least 8 different residences (this doesn’t count any housesitting that we’ve done.

If you given $22 million tax free dollars (any currency), what is the first thing you would do?

The first thing I would do is pay off the rest of our mortgage and any other debts we may have. After that I’d look at how to invest the remaining money so that it could provide us with an adequate annual income and we can make our own choices about where and how we live, work and play.

The Never List: What are things you’ve never done? Or things you know you never will do?

I have never been sky diving, bungee jumping or probably any other extreme activity you can think of.

I will never stop striving towards a simple, sustainable and meaningful life in which I can make a difference and help others.

I have never

I will never give up on my dreams. Chronic illness may have taken away a lot of my options but I will always find a way around it.


Bonus question:  What are you grateful for from last week, and what are you looking forward to in the week coming up?

I’m grateful for the understanding and support of my husband when I was unable to do everything I wanted because of my health and for the opportunity to discuss options and trial new medications with one of the leading pelvic pain specialists in town.

In the next week I’m looking forward to continuing my daily meditation practice (something I’ve taken up in the new year).

Finding balance in the ever-changing landscape of chronic illness

14 Jul 14
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Once again I have fallen behind on my schedule for posting here. As my health has improved (ever so slightly) I’m again trying to find balance between actually doing things physically and mentally, and resting.

Over the last few weeks I have had quite a lot of very busy days (for me at least) mixed with a few days of having no energy to do anything at all. The number of crash days – days where I have no energy at all – do seem to be getting less each month according to my records, but I still haven’t hit the right balance and I’m still struggling to do a full day of anything really.

I have decided that in order to do more physical activity I’m going to have to cut back on my online activities for the next few months at least, as such I will be aiming for only one post here and one post over at LiveKen each week (only every second or so post on LiveKen will be written by me, though I am acting as editor for all other posts).

What physical activity am I wanting to increase?

  • Spending more time with family and friends – I’d like to spend at least one day a week actually out doing something with the people I care about. In the past few weeks I have managed dinner at a friends house, a trip to our local open range zoo with my sister and younger cousin, and tomorrow my sister is taking me and my mum out for a winery tour.
  • Housework – I’m slowly working up to be able to keep on top of this myself. Through de-cluttering and setting up routines I’m hoping to be able to maintain the house at a level that we only need the cleaners in once a month to keep on top of it.
  • Exercise – I’m still trying to build up my exercise levels. The housework has helped a lot with that, but I’d also like to be able to walk or ride my bike a lot more than I’m currently able to.

Other offline activities I would like to increase:

  • Drawing – I feel like although I always want to get more of the drawing done for the Foggy Frog picture book, I’m not always managing to fit in any during the week. My aim is to do two of the hand-drawn pictures a week until they are done and then work out the next steps for colouring them.
  • Study – I have an assignment due in 4 weeks for my uni course, and have not made much progress on the Training and Assessment Certificate so I’m going to be prioritising these for the next month or two when my brain is functioning. I can still only manage maybe 1-2 hours a day actually focusing and being productive in any mentally challenging activities.
  • Business Planning – I have begun working with a business advisor to work out the best way to promote the picture book and build on it with the LiveKen brand. I would like to allocate some more time to this.

Overall, I am trying to find a better balance between my online and offline life so that I’ll be better able to work towards returning to work as soon as possible. As I do this I do have to keep in mind that this illness has a mind of its own. I’m trying my hardest not to get my hopes and expectations up too high, but at the same time trying to challenge myself and not resign myself to where I’m at now.

This balancing act is a difficult one for anyone to achieve well, even without a chronic illness, so I will try to remember that rest is still my first and foremost priority and that I need to be gentle on myself. No matter how frustrating it may be my health must come first.

Have you found balance in your life?

What is or isn’t working for you?